I know that it has been a long time since I posted - Partly because I didn't want to post any depressing news to any of you, but also because I couldn't bear to type it. Since my last posting, we have seen Dr. Cavalier in Baton Rouge. We were very encouraged that he was willing to try new medication for Nick's tremors before doing the surgery for the Baclofen pump. Since then there hasn't been any improvement, so as soon as we can schedule it, they will be doing a trial for the pump. He doesn't give us much hope and Nicholas isn't taking this very well. It is with much sorrow and tears that I write this. It has been an extremely difficult week for all of us.
Nick had us remove all of the momentos of his sporting achievements and the hunting that he once loved so much from his room. He spelled to me "I can't keep living in the past". It was at that point that I realized that our goals were set too high. We all know that he will never be the same. I'm not saying that I have given up hope on him. I know that God is bigger than we can ever imagine and He loves us all and doesn't want us to suffer. I will never understand how something like this happens to people who are so loving and kind and good. What possible purpose could this serve? We may never know, but I have to believe that God has a some purpose for this.
So, for now, we are praying that "Today be better than yesterday, and tommorrow better than today and to accept things no matter how difficult. Little baby steps to improvement.
I can imagine how hard it is for his friends to see him this way, but he really needs you right now. If you could bring yourself to come by to visit for a little while, it would definitely lift his spirits. He misses you all and feels like you have forgotten about him. If you decide to visit, you can expect him to be very thin (The tremors keep him burning calories constantly) but can talk to you by spelling it out on a chart. Feel free to come by anytime.
His therapy has been cut back tremendously because of the tremors. He goes to Speech at 11:00 on Monday and Friday and to Physical and Occupational Therapy on Fridays from 1:00 to 3:00. Stop by any time.
Nick and I pray for all of our family and friends every night. May God bless you keep you safe from harm.
Love,
Sondra
2 comments:
Nick I just want to let you know that no one has forgotten about you, even though it may seem like it!! You are constantly in everyones thoughts and prayers!! I'll come by and see you again soon!!!
Love ya!!
Whit
You are all still in my prayers and I am glad to hear that you are staying positive and Keeping the Faith. If there is anything I can do to help in any way, please let me know. I Love You All.
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